Heidi Maxfield joined IPAD after relocating to Utah in 2013. Since her son’s PKU diagnosis in 2007, she has been a tireless advocate for awareness about the disease and ensuring that life with PKU has no boundaries. As a parent ambassador, she has worked with both the metabolic clinics and medical schools at the University of Louisville and the Medical College of Virginia in educating medical students and advocating for PKU awareness. She has also worked with the National PKU Alliance in assisting with national conferences and lobbying efforts in Washington, D.C.
Heidi has a degree in journalism and public relations from Utah State University. She is a stay-at-home mom who does freelance work in her spare time. She has led both humanitarian and leadership organizations, and formerly authored a food blog. Heidi is an avid reader, and enjoys food, gardening, sports, being outdoors and travel. Most of all, she loves spending time with her husband and their four children, the oldest of whom has PKU. She is in awe of the scientific advances that have been made in PKU research, and hopes for continued strides in PKU treatment and care.
