Amy J. Oliver is the President and Founder of the Intermountain PKU and Allied Disorders Association. At only eight days old, her beautiful baby girl was diagnosed with Phenylketonuria (PKU). Amy spent countless hours searching for information about PKU and what it meant for their daughter; she longed to meet other families with children with PKU. Unfortunately, there was no support group for families dealing with PKU. To ensure that no other family had to go it alone, she decided to join with other local families and start their own non-profit organization that could provide support and education to PKU families and help search for a cure. In 2008, the Intermountain PKU and Allied Disorders Association was born.
Amy is the current President of the National PKU Alliance, the only national non-profit dedicated to the PKU community. She has served on its Board of Directors since 2009 and previously chaired its National Advocacy Committee. Amy has been a passionate advocate for PKU at the local, state and national level and has worked to ensure everyone with PKU has access to medical foods and treatment. Amy also serves as a member of the Utah Newborn Screening Advisory Committee and the Utah Newborn Screening Research Review Panel.
